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June 11, 2019

It took a while to have this happen due to his post-op cranial infection, but we are pleased to announce that Luke has 10 separate fingers! Surgery was on May 8th, 2019, but here are the last pictures of Luke with syndactyly of the hands.

Now, here are some pictures tha...

June 11, 2019

My apologies; it has been a while since I have updated this blog. Everything that has happened since Luke's FOA has been nerve wracking to say the least. Constantly being on guard with the large hole in his skull has been exhausting, but we do what we need to in order...

April 27, 2018

Luke had his third cranial surgery on November 21st to make room for his growing brain.  Over 7 hours later, Luke's Plastic Surgeon came in to tell us that it went very well and that he was very pleased with the amount of space he was able to give Luke.

In surgery, Luk...

November 15, 2017

We were informed last year that Luke was to be named the March of Dimes - March for Babies regional ambassador for 2018!! We have been working closely with the local development manager and they have rolled out the campaign for the 2018 walk in Buhl Park on May 6, 2018...

February 25, 2017

We came together to celebrate the birth of this amazing baby boy who has brought so much joy into all of the lives he has touched. He is simply the happiest baby we have ever met. I will let the pictures do the rest of the talking in this post!

April 17, 2016

The past month has been rough for Luke as he had to have another nasal dilation at the end of March. He had stents in his nose for 2 days which will help him breathe a little easier. Here are a couple of pictures from that surgery.

Here are a couple of pictures after hi...

February 22, 2016

Luke was born on February 2nd, 2016 and was diagnosed with Apert Syndrome. Apert Syndrome is a rare genetic disorder that occurs in an estimated 1 in 88,000 births. There are no known causes for the mutation of the FGFR2 gene, however geneticists are continually explor...

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10 Separate Fingers!

June 11, 2019

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