Luke's Birth and NICU Stay
Luke was born on February 2nd, 2016 and was diagnosed with Apert Syndrome. Apert Syndrome is a rare genetic disorder that occurs in an estimated 1 in 88,000 births. There are no known causes for the mutation of the FGFR2 gene, however geneticists are continually exploring all possibilities. Apert Syndrome is characterized by the malformation of the skull due to the fibrous joints between the plates in the skull, also known as sutures, to close prematurely. This is known as cr
