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Luke's Birth and NICU Stay

Luke was born on February 2nd, 2016 and was diagnosed with Apert Syndrome. Apert Syndrome is a rare genetic disorder that occurs in an estimated 1 in 88,000 births. There are no known causes for the mutation of the FGFR2 gene, however geneticists are continually exploring all possibilities. Apert Syndrome is characterized by the malformation of the skull due to the fibrous joints between the plates in the skull, also known as sutures, to close prematurely. This is known as craniosynostosis and can lead to distinct facial features such as bulging eyes and a misshapen skull. Due to the fused sutures in Luke's skull, he also has a condition known as mid-face hypoplasia, which looks like he has

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