It took a while to have this happen due to his post-op cranial infection, but we are pleased to announce that Luke has 10 separate fingers! Surgery was on May 8th, 2019, but here are the last pictures of Luke with syndactyly of the hands. Now, here are some pictures that the surgeon took before putting the casts on Luke. Luke had the casts on for 3 weeks. He really never cared about having these casts on, although he did get frustrated a couple of times, he genuinely made to the most of it. Here are some pictures of him with these casts. To say that Luke is enjoying showing everyone his hands is an understatement! He is very excited to have these fingers and although they will not bend the w
My apologies; it has been a while since I have updated this blog. Everything that has happened since Luke's FOA has been nerve wracking to say the least. Constantly being on guard with the large hole in his skull has been exhausting, but we do what we need to in order to keep Luke safe. Over the course of the past year, Luke managed to follow the doctors' orders, and stay out of the OR for any surgery that involved the cutting of bone. The antibiotics that he was on after the infection from his FOA lasted until January of this year. His surgeons felt the need to err on the side of caution, and we agreed. He had blood draws every month to make sure that the antibiotics were not causing any ha
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